I found out today that it's getting hard for me to get my Robinul (Glycopyrrolate) at the PBS rate. At the moment, the palliative care people are doing all they can.
Without this vital drug that increases my quality of life massively, being on the PBS it costs $35 a day. That's a LOT when you're on a pension.
Time to lobby my local MP to get it on that list.
Without glycopyrrolate, I produce too much saliva, which given the hole in between my stomach and lungs, means I spend all day coughing it up through my lungs. Not pleasant at all and literally life destroying.
Here's my call for Glycopyrrolate to be added to the PBS ASAP.
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